I Have IIH Foundation

A video by our Partner Organisation IH Kiddos secret pals

Sat, 18 Aug 2012 23:01:03 +0100

A video by our Partner Organisation IH Kiddos secret pals

Our new logo!

Thu, 16 Aug 2012 13:26:19 +0100

Our new logo!

Fundraising for I Have IIH Foundation

Wed, 11 Jul 2012 21:14:16 +0100

Fundraising for I Have IIH Foundation:

Do you shop with Ebay, Amazon or do online shopping at Asda’s? You can raise money for I Have IIH Foundation while shopping at these sites through Easy fundraising! Just choose us as your cause and start shopping!

Comparison of programmable shunt valves vs standard valves.

Fri, 29 Jun 2012 17:29:13 +0100

Comparison of programmable shunt valves vs standard valves.

Programmable shunt valve affected by exposure to a tablet - IPad 2

Fri, 29 Jun 2012 17:27:06 +0100

Programmable shunt valve affected by exposure to a tablet - IPad 2:

Programmable shunt valve affected by exposure to a tablet - IPad 2

This is a IHers video about her experience with IIH her name is...

Wed, 27 Jun 2012 19:28:15 +0100

This is a IHers video about her experience with IIH her name is Elena Magnavacca. Please support and share.

The Effects of IIH on Kudi « Run Kudi Run

Wed, 27 Jun 2012 19:16:45 +0100

The Effects of IIH on Kudi « Run Kudi Run:

This is a IHers blog about her experience with IIH, Please read and support.

A VP Shunt

Thu, 21 Jun 2012 20:46:36 +0100

A VP Shunt

A Programmable VP Shunt having the setting’s change.

Thu, 21 Jun 2012 20:09:22 +0100

A Programmable VP Shunt having the setting’s change.

Us and our partners

Tue, 05 Jun 2012 18:32:34 +0100

Us and our partners

Awareness video by Intracranial Hypertension Research Foundation

Wed, 30 May 2012 18:24:29 +0100

Awareness video by Intracranial Hypertension Research Foundation

IH Awareness video

Wed, 30 May 2012 18:13:45 +0100

IH Awareness video

I Have IIH Foundation partner Intracranial Hypertension...

Wed, 30 May 2012 18:09:56 +0100

I Have IIH Foundation partner Intracranial Hypertension Australia

Awareness video.

This is from the launch dinner of Intracranial Hypertension...

Tue, 29 May 2012 19:59:48 +0100

This is from the launch dinner of Intracranial Hypertension Australia one of I Have IIH Foundation’s partners
http://ih-australia.com.au/

IH Kiddo'secret pals

Tue, 29 May 2012 19:09:17 +0100

IH Kiddo'secret pals:

IH Kiddo’s Secret Pals Partners of I Have IIH Foundation

We are an international team that supports IH children all over the world.Our Mission: To provide comfort and support to children who suffer from Intracranial Hypertension and to raise awareness of this debilitating rare disease.

Lumber Punctures are a way of diagnosing IIH and giving relief...

Fri, 25 May 2012 20:16:06 +0100

Lumber Punctures are a way of diagnosing IIH and giving relief to sufferers.

I Have IIH Foundation, You can find our Information and connect with other sufferers here;

Fri, 25 May 2012 19:47:30 +0100

I Have IIH Foundation, You can find our Information and connect with other sufferers here;

Insommia is a symptom of IIH

Thu, 24 May 2012 18:54:04 +0100

Insommia is a symptom of IIH

I Have IIH Foundation Video

Thu, 24 May 2012 06:11:56 +0100

I Have IIH Foundation

Video

I Have IIH Foundation

Thu, 24 May 2012 06:07:00 +0100

we are an International IIH Patient Support and Advocacy Organisation who are passionate and dedicated to raising awareness and funds for the IH Research Foundation, and IIH worldwide. We are in Partnership with the Brain and Spine Foundation,Rare Disease UK,Rare Disease Day USA and the Global Genes Project, and many others. We are also a Cure the Process Campaign Partner. We strongly advocate and encourage support for all these organisations.

What do we do? We are a unique group based in the UK, who help you to adapt to life with IIH, and give you back your confidence and wellbeing by teaching you how to focus on the positive sides of living with this condition, wherever you are in the world.

How can we do this? We too have experience with IIH, we have found ways to live with this condition and we want to share them with you.

What can you expect from I Have IIH? We offer you constructive advice based on experience and success. Although we do offer information on the various topics from authorities on IIH, we primarily aim to help you to achieve a more positive and productive life with this condition. We dont put a time limit on your membership, and actively encourage you to keep coming back, just to let us know how you’ve been getting on, as well as to share your support, coping strategies and friendship with other members.

We are self funded and do not host or receive funding from any advertising. Instead we encourage you to donate to the organisations we advocate for.

Our logo represents the whole of the IIH community of men, women, children, family and friends in a positive way.

By definition a “Kindred Spirit” is someone who “thinks and feels the same way as another person”. Having a condition such as IIH can make you feel isolated and misunderstood, but not here. Here you can connect to people who know how you feel and what you’re going through.

We know you want a better IIH life and we want to help you achieve it.

That’s why…

…we’ll always be here when you need us!